Note from Webmaster 4/6/2002
The Wilson's Disease Patient Information Exchange has not been updated in a number of years. Some links may be dead, the forms don't work
and some information may not be timely.
This site was one of the first I made - in early 1997 I believe. At that time, I scoured the Internet for information about the disease
and am happy this site currently gets a lot of use out of others like me and their families. I hope to soon update it and get everything working,
but in the mean time, please accept apology: the treatment of my disorder was so successful, I went from someone on permanent disability
to someone too busy with his own Internet business to update a labor of love. Most days, the thought that I have Wilson's Disease doesn't
enter my mind except for the few seconds before and after I take my zinc - an act so routine, I probably don't associate it with
a disease most of the time.
I have several dozen patient histories to add, and if you're one of the people who have tried to submit a form here and got an error, I really
If you're interested in what I'm doing now, I'm an independent contractor (warning: some links there are
racy in a PG-13 kind of way) specializing in complex Flash gizmos and data driven websites. I also do websites for smaller concerns,
such as this one about early childhood reading.
I mainly wanted to apologize for not having updated the site in so long and give people realistic hope that their recovery might be
as complete as mine.
- Erik Mattheis